Best Practices

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The number of successful implementations of personalised medicine approaches in healthcare is increasing. However, there is a strong need to facilitate the uptake of further personalised medicine approaches while ensuring a sustainable and effective health system.

To support personalised medicine implementation, the European Partnership for Personalised Medicine (EP PerMed) will not only support personalised medicine research, but also continuously map and communicate on progress and achievements within all personalised medicine related areas. These Best Practice Examples include not only innovations and successful implementation in the clinic or even standard care, but can also be supporting (political) frameworks, successful international or interdisciplinary collaboration or citizen engagement or dissemination campaigns.

By sharing Best Practice Examples, EP PerMed aims to demonstrate the value of personalised medicine in terms of quality of care, quality of life, cost-effectiveness, and sustainability – hoping to motivate others to implement similar approaches.

Romania’s Pioneering Law: Establishing the Right to Personalised Medicine

This best practice example discusses Romania’s groundbreaking law, the first in the world to recognise the right of citizens and patients to personalised medicine. Initiated following the EU Council’s 2015 personalised medicine policy, the law is the result of a multi-sectoral collaboration led by the Centre for Innovation in Medicine in Romania, using a quadruple helix model (later developed into a penta helix) involving the academia, public, private and civil society sectors. The law, promulgated on 24 May 2023, gives patients a legal right to personalised health care in a manner that takes into account individual genetic and phenotypic characteristics.