Governance & Boards

The European Partnership for Personalised Medicine, EP PerMed, gathers together more than 50 partners from over 20 countries. Together with the representatives from the European Commission (EC), these partners form the General Assembly (GeA).

The GeA is the formal decision-making body of EP PerMed. It discusses and decides about the strategy and major orientation of EP PerMed, the priorities and actions to be supported, and the allocation of budget for the implementation of various activities. It meets at least once a year.

The Extended General Assembly (ExtGeA) includes the GeA and additionally the members of the International Consortium for Personalised Medicine (ICPerMed). The involvement of ICPerMed ensures the inclusion and utilization of an international and other strategic PM perspectives. The ExtGeA discusses and advises EP PerMed activities and decides on joint activities.

The Coordination Unit (CU) drives the operational activities, preparing decisions to be made by the GeA. Composed of the EP PerMed Coordinator, the five Work Package Leads and the EC, the CU ensures an effective coordination, alignment and management of the overall activities.

The EP PerMed overarching Advisory Bodies are ICPerMed, an Advisory Board and a Stakeholder Forum. Further, more specific Advisory Bodies will be established, providing advice for activities within specific Work Packages (e.g. Innovation Advisory Board for WP3 or call-specific Advisory Boards).

Further, for each of the seven Joint Transnational Calls (JTCs) that EP PerMed will announce, a Call Steering Committee (CSC) is established. The CSC develops and implements the particular JTC.

EP PerMed Consortium Bodies

Extended General Assembly (ExGeA)

General Assembly (GeA) and ICPerMed
Discuss and advice activities of EP PerMed

Management Bodies

General Assembly (GeA)

EP PerMed Partners, EC
Formal decision-making body

Coordination Unit (CU)

Coordinator, WP leads, EC
Support of day-to-day business, alignment of activities, preparation of GeA decisions

Executive Bodies

Work Packages 1-5

Day-to-day business, planning and implementation of activities

Advisory Bodies

ICPerMed Stakeholder Forum

Advisory Board

EP PerMed Work Packages

All EP PerMed activities are planned and implemented within five Work Packages (WP).

Work Package 1

WP1 for management and coordination: WP1 implements the transversal activities of project coordination of over 50 partners, the five WPs, and Advisory Bodies as well as activities for external project communication, dissemination and cooperation. All dissemination activities and events, managed centrally by WP1 in close collaboration with the other WPs, enable a close interaction of EP PerMed with the scientific community, policy makers, R&I funding organisations, European programmes, public and private sectorsand other stakeholders. WP1 further coordinates EP PerMed’s strategic planning, such as supplementing and updating the Strategic Research and Innovation Agenda for Personalised Medicine (SRIA for PM, 2023), preparing Annual Work Programmes (AWP), identifying future developments, and exploring synergies with other initiatives. Also, the coordinator and WP1 are the main contact for the European Commission.

Main contributors: DLR, ANR, VLO-EWI, IACS, TLS, CSO-MOH, ISCIII, FTELE, It-MoH, VINNOVA, BMBWF-AT, MUR

Work Package 1

DLR Projektträger
Konstanze Albrecht
eppermed@dlr.de

Work Package 2

WP2 for PM research-related funding and support: WP2 implements joint funding activities, especially the seven annual Joint Transnational Calls (JTC2024-2030), but also other foreseen calls, e.g. Network Calls and Research Technology and Innovation Calls (RITC), in all areas of PM-related research. The thematic focus of funding activities is being developed along the recommendation of the SRIA, other recent developments related to PM and indicated in the partnership’s AWP. Particularly, with JTC and RITC, EP PerMed aims to establish and fund research and innovation collaborative projects of different sizes and durations on priority areas of common interest and based on needs identified through WP3 and WP4 mapping activities. The different funding and supporting activities will enable scientists, clinicians, and innovators to build an effective transnational collaboration on common interdisciplinary consortia, and also contribute to strengthening the collaboration between different types of sectors and stakeholder.

Main contributors: ANR, BMBWF-AT, DLR, ISCIII, Zon, EITH, VLO-EWI, VINNOVA, RCN, It-MoH, CSO-MOH, FRS-FNRS

Work Package 2

French National Research Agency
Monika Frenzel
eppermed@agencerecherche.fr

Work Package 3

WP3 for accelerating PM development, innovation, and absorption – maximising impact: WP3 accelerates innovation, absorption, and implementation of PM in collaboration with the other WPs, in particular WP4. The EP PerMed Radar analyses the innovation potential of funded projects and builds on the work within WP2, WP4, and WP5 to develop insights of needs and options for development and innovation. The analysis also builds on input from dialogues with regions, national and international stakeholders. The EP PerMed Accelerator covers three parts – offers, connect and act. (I) Offers include information on e.g. available tools, calls, resources, programmes, infrastructures and events to further develop projects outcomes and PM approaches. (II) Connect facilitates connections of needs and offers between various partners for new collaborations to support PM innovations. (III) Act proposes actions, activities and tools according to the identified needs.

Main contributors: VLO-EWI, DLR, ANR, TLS, ISCIII, FTELE, EITH, VINNOVA, BBMRI-ERIC, IACS, BIOEF, InnoSuisse

Work Package 3

Government of Flanders – Vlaams Gewest
Kathleen D’Hondt
kathleen.dhondt@vlaanderen.be

Work Package 4

WP4 for the implementation of PM in public healthcare: WP4 communicates progress and knowledge within all PM areas which are relevant for PM implementation into healthcare systems, and which demonstrate the value of PM in terms of quality of care, quality of life, cost-effectiveness, and sustainability. This includes knowledge and information about new therapies, biomarkers, diagnostics, devices, preventive measures, and processes, as well as insights relating to ethical, legal, societal, and political aspects. Full implementation of PM in healthcare will require different levels of developments in the diverse healthcare systems and this will take time and effort. There is therefore a need to communicate and discuss at a more overall level the opportunities PM provides. WP4 will keep such discussions alive through, e.g. dedicated panels, meetings, and networking activities. A broad set of EP PerMed tools will be developed and available to reach the WP4 objectives, e.g., best practice examples, workshops/conferences, white papers, networking activities, pilot- and demonstration projects. Some of the actions will be in cooperation with ICPerMed and other PM-related initiatives.

Main contributors: IACS, It-MoH, CSO-MOH, SFI, DLR, BIOEF, EITH, RT, DPTO-Salud, TUBITAK

Work Package 4

Health Sciences Institute in Aragon (IACS)
Juan Riese
jriesej.iacs@aragon.es

Work Package 5

WP5 for International, Transnational, Interregional and Overarching Cooperation: WP5 aims to leverage and reinforce the collaboration with stakeholders at regional, international, transnational and interregional level, building on the achievements of the International Consortium for Personalised Medicine, ICPerMed and releated initiatives and projects. Another collaboration is being built with regional and national research and innovation communities, which are proven to ease the access of PM innovation into clinical and healthcare settings and accelerating people’s access to personalised intervention. Additionally, WP5 engages and involves citizens and medical societies, and closely connects to research and innovation infrastructures on European and national level. It furthermore provides training and support on PM-specific ethical, legal, data protection, data sharing and reuse as well as social and economic and value aspects.

Main contributors: TLS, DLR, ANR, BMBWF-AT, Zon, FRRB, FTELE, DPTO-Salud, BIOEF, CFN, DS-CAT, RT, SMWK, IACS, BBMRI-ERIC, ISCIII, EITH, AICIB

Work Package 5

Toscana Life Sciences
Gianni D’Errico
g.derrico@toscanalifesciences.org

EP PerMed Executive Bodies

Work Package 1: Coordination and Management

Programme Management and Strategic Development

Work Package 2

PM Research-related Funding and Support

Work Package 3

Accelerating PM Development, Innovation and Absorption – Maximising Impact

Work Package 4

Implementation of PM in Public Healthcare

Work Packages 5

International, Transnational, Interregional and Overarching Cooperation

Coordination

Coordinator

DLR Projektträger
Wolfgang Ballensiefen
eppermed@dlr.de

Innovation Advisory Board

The Innovation Advisory Board brings together crucial expertise to identify the key needs within the personalised medicine system to accelerate innovation. EP PerMed will be supported by the board in identifying existing offers, tools, and best practices for supporting the innovation of promising personalised medicine projects and initiatives. By leveraging the collective expertise of the board members, promising projects with the potential to advance to higher technology readiness levels will be recognized. Further, the Innovation Advisory Board will advise on and contribute to innovation-related events within EP PerMed, such as round tables and hackathons, and provide valuable input to the Strategic Research and Innovation Agenda (SRIA).

Maria Laura García Bermejo

  • Scientific director at Ramon & Cajal Health Research Institute (IRYCIS, Spain)
  • Spain and European infrastructure for translational medicine (EATRIS)

Jenni Nordborg

  • Director of International affairs at Lif, the Research-Based Pharmaceutical Industry (Sweden)
  • Former senior management at Swedish government and VINNOVA

Joanne Hackett

  • Head of Genomic and Precision Medicine, at IQVIA (UK)
  • Former  CCO at Genomics England

Erwin Sablon

  • Head of Business Development/Expert Scientist Diagnostics & Biomarkers, at VIB (Belgium)

Sander Pajusalu

© Andres Tennus
  • Head of the Genetics and Personalized Medicine and Senior Medical Geneticist at Tartu University Hospital (Estonia)
  • Vice Dean and Associate Professor at the University of Tartu Faculty of Medicine

Fátima Al-Shahrour

© Amparo Garrido
  • Head of the Bioinformatics Unit at the Spanish National Cancer Research Centre

Anne Cambon-Thomsen

  • Doctor, Emeritus Research Director at the Centre National de la Recherche Scientifique (France)
  • Former Director-Coordinator of the ELSI joint service of BBMRI-ERIC

Romain Alderweireldt

© Aurore Delsoir
  • Lawyer, specialized in telecoms and pharmaceutical competition law at CMS Brussels (Belgium)
  • Founder of 101 Genomes foundation
Implementation Advisory Board

The Implementation Advisory Board (ImAB) serves as a strategic consultative body within the EP PerMed partnership, dedicated to bridging the gap between high-level research and real-world clinical application. By ensuring that the partnership’s outcomes are both scientifically robust and practically implementable across diverse European healthcare systems, the ImAB provides expert strategic guidance on integrating personalised medicine into routine practice while aligning the roadmap with the evolving needs of patients, providers, and policymakers. Furthermore, the Board plays a critical role in identifying regulatory, ethical, or technical bottlenecks early in the implementation phase and advising on sustainable, long-term models to effectively scale personalised medicine initiatives beyond the project’s lifespan.

Antonella Cardone

  • CEO of Cancer Patients Europe (CPE), a pan-European and all-cancer types patient organisation
  • Patient Advocacy Expert and Advisor to the Board of Pancreatic Cancer Europe (PCE)

Ornella Gonzato

  • Chair of Fondazione Paola Gonzato (Italian sarcoma patient advocacy organisation)
  • Board of Directors, Sarcoma Patient Advocacy Global Network (SPAGN)
  • Regulatory affairs consultant in the life science area

Jasmine Gratton

  • Topic Lead for Pharmacogenomics at the European Medicines Agency (EMA)

Giedre Kvedaraviciene

www.foto-grafija.lt
  • Director of Lithuanian population and rare disorders biobank at Vilnius University, Faculty of Medicine
  • Board member of the national BBMRI LT node
  • Health economist & experienced C level executive

Ramon Maspons

  • Chief Health Innovation Strategist at Catalan Ministry of Health and
  • Chief Innovation Officer at Agency for Health Quality and Assessment of Catalonia

Munir Pirmohamed

  • Director of the Centre for Drug Safety Sciences
  • Director of the Wolfson Centre for Personalised Medicine
  • Director of HDR North

Neeme Tõnisson

  • Professor of Clinical Genetics at the University of Tartu, Institute of Genomics (Estonia)
  • Senior Clinical Geneticist at Tartu University Hospital (Estonia).
  • President of Estonian Medical Association

Sahar Barjesteh van Waalwijk van Doorn-Khosrovani

  • Associate Professor of Medical Oncology at Leiden University Medical Centre
  • CZ Health Insurance in the Netherlands
  • Member of the National Payer’s Evaluation Committee for Specialised Medicines and Companion Diagnostics (CieBAG)
  • Represents the International Association of Mutual Benefit Societies (AIM) in the EU HTA Stakeholder Network

Vasiliki Rafaela Vakouftsi

  • President of the Hellenic Society of Crohn’s Disease and Ulcerative Colitis’ Patients
  • Board Member of International Alliance of Patients’ Organizations
  • Youth Coordinator at the International Federation of Crohn’s and Ulcerative Colitis Associations

Liisa-Maria Voipio-Pulkki 

  • Former Director General of Strategy, Finnish Ministry of Social Affairs and Health (ret.)
  • Chair, Board of the Finnish Heart Association 

Benedikt Westphalen

© Detlef Eden
  • Lead of the Center for Personalised Medicine (ZPM Onkologie) at the University Hospital of Munich (LMU)
  • Head of the Precision Oncology Program at the Comprehensive Cancer Center Munich
  • Chair of the Precision Oncology & Taxonomy Committee at the European Society of Medical Oncology (ESMO)
  • Member of the European Commission Expert Group ‘Cancer Mission Board’