The European Rare Diseases Research Alliance (ERDERA) launches this September with an estimated budget of €380 million to improve the lives of 30 million rare disease patients in Europe and beyond.
ERDERA follows its predecessor EJPRD to bring under one roof all knowledge, resources and services, boost clinical research and spur innovation to make Europe a world leader in this field. It integrates over 170 organisations from the public and private sectors to advance prevention, diagnosis and treatment research in rare diseases.
To present its ambition in the wider context of the EU rare diseases research strategy, ERDERA will hold a launch event on 28 to 29 October 2024.
EP PerMed will ensure close cooperation with ERDERA, for example by discussing possible cooperation and synergies during the bi-annual meeting of all European Partnerships in the health sector.