EP PerMed organised a symposium on the ELSA of personalised medicine on 26 September 2024 in Brussels, Belgium.
The EP PerMed Symposium on Ethical, Legal and Social Aspects of Personalised Medicine addressed the main ethical challenges in personalised medicine research in order to raise awareness and train researchers by addressing ELSA issues in personalised medicine from a macro approach (ethics of new technologies) to a specific approach (ethics, legal issues, privacy issues and artificial intelligence (AI) in personalised medicine).
The event took place in a hybrid format with around 120 participants on site and online. A report on the symposium will be published in the coming weeks.
The ethical conduct of research and innovation activities ensures the quality of research data and the reusability of its results, promotes values essential to collaborative work and establishes accountability to the public. In addition, ethical standards facilitate the process of building public trust and inspire the development of other important moral and social values (human rights, diversity, animal welfare, etc.). Ethical principles in research are considered fundamental in the context of the European Union’s Framework Programme for Research and Innovation Horizon Europe and are therefore mandatory for the research and innovation projects funded by EP PerMed and its predecessor ERA PerMed.
Agenda
08:30 – 09:00
Registration of Participants
09:00 – 09:10
Welcoming Notes
09:10 – 09:20
Introduction to EP PerMed Work Package 5
09:20 – 09:30
Introduction to Task 5.7 ‘Tackling Ethical Legal and Social Aspects within EP PerMed’ and purposes of the Symposium
09:30 – 10:00
Ethics in Science and New Technologies
M. Patrão Neves
National Council of Ethics for the Life Sciences
10:00– 10:15
Q & A
10:15– 10:45
Ethical considerations specific to Personalised Medicine
Mette Nordahl Svendsen
Center for Medical Sciences and Technology Studies of University of Copenhagen
10:45– 11:00
Q & A
11:00 – 11:30
Legal Challenges related to Personalised Medicine
Carla Barbosa
Biomedical Law Center of University of Coimbra
11:30 – 11:45
Q & A
11:45 – 12:00
Coffee-Break
12:00 – 12:30
Personalised Medicine and the Data Protection regulations
Carlos Telleria
Instituto Aragonés de Ciencias de la Salud
12:30 – 12:45
Q & A
12:45 – 13:15
Artificial Intelligence in the context of Personalised Medicine and its ethical perspectives
Julian März
Institute of Biomedical Ethics and History of Medicine of University of Zurich
13:15 – 13:30
Q & A
13:30 – 14:00
Roundtable & Closing Remarks