Registration open: EP PerMed Symposium on Ethical Legal and Social Aspects of Personalised Medicine

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The ethical conduct of research and innovation activities ensures the quality of research data and the reusability of its results, promotes values essential to collaborative work and establishes accountability to the public. In addition, ethical standards facilitate the process of building public trust and inspire the development of other important moral and social values (human rights, diversity, animal welfare, etc.). Ethical principles in research are considered fundamental in the context of the European Union’s Framework Programme for Research and Innovation Horizon Europe and are therefore mandatory for the research and innovation projects funded by EP PerMed and its predecessor ERA PerMed.

The EP PerMed Symposium on Ethical, Legal and Social Aspects of Personalised Medicine aims to address the main ethical challenges in personalised medicine research in order to raise awareness and train researchers by addressing ELSA issues in personalised medicine from a macro approach (ethics of new technologies) to a specific approach (ethics, legal issues, privacy issues and artificial intelligence (AI) in personalised medicine).

Due to limited space on site, the event will take place in a hybrid format.

Location: Tuscany Region EU Delegation, Rond Point Schuman 14, 1040 Brussels (Belgium)

Agenda

08:30 – 09:00

Registration of Participants

09:00 – 09:10

Welcoming Notes

09:10 – 09:20

Introduction to EP PerMed Work Package 5

09:20 – 09:30

Introduction to Task 5.7 ‘Tackling Ethical Legal and Social Aspects within EP PerMed’ and purposes of the Symposium

09:30 – 10:00

Ethics in Science and New Technologies

M. Patrão Neves
National Council of Ethics for the Life Sciences

10:00– 10:15

Q & A

10:15– 10:45

Ethical considerations specific to Personalised Medicine

Mette Nordahl Svendsen
Center for Medical Sciences and Technology Studies of University of Copenhagen

10:45– 11:00

Q & A

11:00 – 11:30

Legal Challenges related to Personalised Medicine

Carla Barbosa
Biomedical Law Center of University of Coimbra

11:30 – 11:45

Q & A

11:45 – 12:00

Coffee-Break

12:00 – 12:30

Personalised Medicine and the Data Protection regulations

Carlos Telleria
Instituto Aragonés de Ciencias de la Salud

12:30 – 12:45

Q & A

12:45 – 13:15

Artificial Intelligence in the context of Personalised Medicine and its ethical perspectives

Julian März
Institute of Biomedical Ethics and History of Medicine of University of Zurich

13:15 – 13:30

Q & A

13:30 – 14:00

Roundtable & Closing Remarks