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Ethical, Legal and Social Aspects (ELSA) in Personalised Medicine
Personalised medicine holds great promise to improve health outcomes for individuals based on their genetic, environmental and lifestyle factors. However, on the road to unlocking its potential, there are a number of ethical, legal and societal issues (ELSA) that arise from its use. These concerns range from privacy and data protection to issues of access…
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Data Reusability
Guidelines for Data Reusability for personalised medicine researchers and other stakeholders Personalised medicine marks a paradigm shift from a “one-size-fits-all” approach to a tailored strategy for disease prevention, diagnosis, and treatment. It leverages an individual’s unique biological characteristics (e.g., phenotype, endotype, genotype) alongside lifestyle and environmental factors to optimise healthcare outcomes. With rapid advancements in…
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Open Access in Personalised Medicine
Open Science and Open Access are key aspects of the Responsible Research and Innovation (RRI) approach. Open Science and Open Access are key aspects of the Responsible Research and Innovation (RRI) approach. It provides online, free, re-usable and shared access to scientific information (peer-reviewed scientific research articles and research data). In order to implement open…
